ME or Myalgic Encephalomyelitis

Wednesday, September 27th, 2017

ME or Myalgic Encephalomyelitis, aka CFS, Chronic Fatigue Syndrome (and maybe, “It’s all in your head…”)

ME is the acronym for Myalgic Encephalomyelitis, a mouthful for anyone, never mind those who have the disease or perhaps one of its precursors, Lyme disease.

Like many who have discovered they have Lyme disease, I was diagnosed with Chronic Fatigue Syndrome (CFS) by an Infectious Disease specialist. (I originally wrote much of this article in 2012.  Little has changed.)

The specialist ignored most of my symptoms and either would not or could not answer some of the questions I gave him in response to his diagnosis, like, “Why, if it’s CFS, am I still getting sicker?  Why did antibiotics bring a great improvement after one month, and why, after being on antibiotics for six months, did I begin to get sick again within two months of going off them?”

Royal Free Hospital in London

His quick reply about antibiotics was that it was a placebo effect, or in other words, it’s all in my mind,  because my mind is telling me the antibiotics are working, I feel better on them, and when I go off, my mind tells me I’m getting sick, again.

This reply was without knowing me, without knowing my nature, my natural skepticism about any kind of treatment, in fact, without doing any kind of proper assessment of what my experience with antibiotics really was.  He should see just how healthy it feels to be on antibiotics for a while!  Not!! (more…)