ME or Myalgic Encephalomyelitis

Wednesday, September 27th, 2017

ME or Myalgic Encephalomyelitis, aka CFS, Chronic Fatigue Syndrome (and maybe, “It’s all in your head…”)

ME is the acronym for Myalgic Encephalomyelitis, a mouthful for anyone, never mind those who have the disease or perhaps one of its precursors, Lyme disease.

Like many who have discovered they have Lyme disease, I was diagnosed with Chronic Fatigue Syndrome (CFS) by an Infectious Disease specialist. (I originally wrote much of this article in 2012.  Little has changed.)

The specialist ignored most of my symptoms and either would not or could not answer some of the questions I gave him in response to his diagnosis, like, “Why, if it’s CFS, am I still getting sicker?  Why did antibiotics bring a great improvement after one month, and why, after being on antibiotics for six months, did I begin to get sick again within two months of going off them?”

Royal Free Hospital in London

His quick reply about antibiotics was that it was a placebo effect, or in other words, it’s all in my mind,  because my mind is telling me the antibiotics are working, I feel better on them, and when I go off, my mind tells me I’m getting sick, again.

This reply was without knowing me, without knowing my nature, my natural skepticism about any kind of treatment, in fact, without doing any kind of proper assessment of what my experience with antibiotics really was.  He should see just how healthy it feels to be on antibiotics for a while!  Not!! (more…)

ILADS Guidelines Going Mainstream

Tuesday, September 22nd, 2015

ILADS Guidelines Going Mainstream – now listed on National Guidelines Website

ILADS guidelines are finally going mainstream.  They have now been listed on the National Guidelines website for doctors and healthcare providers around the country (USA, so far), meaning they are being recognized as trustworthy.

ILADS Guidelines going mainstream

(Photo credit: Wikipedia)

The following article from ILADS is very good news for all those with Lyme disease and their loved ones (and frustrated healthcare providers).

ILADS treatment guidelines are now listed on the National Guidelines Clearinghouse Website.

(Sept 21, 2015) — The Centers for Disease Control and Prevention (CDC) estimates that more than 300,000 new cases of Lyme disease occur annually in the US. ILADS guidelines, Evidence Assessments and Guideline Recommendations in Lyme disease: The Clinical Management of Known Tick Bites, Erythema Migrans Rashes and Persistent Disease” bring the latest scientific evidence to bear on the management of the illness. ILADS is proud to announce their guidelines are now available on the National Guidelines Clearinghouse (NGC) website.  —– more —–

For Media Inquiries:
International Lyme and Associated Diseases Society (ILADS)
Barbara Buchman
lymedocs@ilads.org
301-263-1080

 

 

Biofilm

Saturday, January 31st, 2015

Biofilm and Lyme Disease

by Dave Cottrell

Biofilm in Lyme disease, first discovered by Dr. Alan B. MacDonald, has horrible implications for Lyme disease sufferers.

Dr. MacDonald, a hospital forensic pathologist, has studied Alzheimers and Dementia for most of his life.  In his quest for answers, he decided to look for Lyme disease, specifically the bacterium, Borrelia burgdorferi, in the brains of patients who had died with Alzheimers.

Dr, MacDonald’s reasoning was that Borrelia is an organism that is very similar to Syphilis, which has long been known to cause dementia when left untreated.  What he discovered shocked him.  In seven out of ten separate brain samples from the Harvard Brain bank, he discovered both Borrelia spirochetes and cysts in high numbers.  What REALLY caused the Dementia and eventual death of these patients?

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Chronic Lyme Disease is a Fact

Monday, July 7th, 2014

Chronic Lyme Disease is a Fact, but most doctors don’t know that

by Dave Cottrell

Chronic Lyme Disease  is a fact that has been proven by very good science, yet it is still being denied by the IDSA.

Most GOOD doctors don’t realize that Lyme disease even exists in their area, because they are told by their own regulating body that it doesn’t.

English: This photograph depicts a white-foote...

English: This photograph depicts a white-footed mouse, Peromyscus leucopus, which is a wild rodent reservoir host of ticks, which are known to carry the bacteria, Borrelia burgdorferi, responsible for Lyme disease. During their larval stage, Ixodidae, or “hard ticks” feed on small mammals, particularly the white-footed mouse, which serves as the primary reservoir for B. burgdorferi. (Photo credit: Wikipedia)

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Lyme Disease Much Higher Than Previously Reported

Sunday, April 13th, 2014

Lyme Disease in the US (and Canada) Is Under reported by a Factor of 10

by Dave Cottrell

Lyme disease is very seriously under reported in North America.   According to an article by Dr. Mercola, the prevalence of Lyme disease in the United States is ten times greater than what is being reported.

English: National Lyme disease risk map with 4...

English: National Lyme disease risk map with 4 categories of risk. (Photo credit: Wikipedia)

It’s natural to assume that the same is true for Canada, as there are no known border barriers to prevent ticks and other vectors from entering the country!  Due to long term denial of the existence of Lyme disease in Canada, which is finally slowly being accepted as a fact, reporting in this country may be substantially lower than even in the US.

(For an example of how ridiculous the current accepted risk area for Lyme disease is in North America, see the map image on this page.  Some go so far as to show the entire contiguous US and Alaska as being endemic for Lyme disease, while leaving out Canada, entirely!!  Did these ticks forget their passports??)

Lyme disease is a very serious infection that, if left untreated, can cripple and even kill its human hosts.  Furthermore, it may be even more widespread than even those who speak out loudest about it realize.

According to Dr. Mercola,  “It’s worth noting that while many still attribute Lyme transmission exclusively to ticks, Dr. Deitrich Klinghardt, one of the leading authorities on Lyme disease, warns that the bacteria can also be spread by other insects, including mosquitoes, spiders, fleas, and mites. This may be the reason so few Lyme sufferers recall being bitten by a tick. The other reason of course, is that you don’t feel the bite, and usually don’t see the tick!”

For the full article by Dr. Mercola, go to:  http://articles.mercola.com/sites/articles/archive/2013/09/04/lyme-disease.aspx

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The Biology of Lyme Disease

Monday, November 11th, 2013

The Biology of Lyme Disease – a continuing saga of suffering, controversy and outright denial of facts…

by Dave Cottrell

The biology of Lyme disease continues to elicit controversy in the medical community, including denial of facts from those who are most able to help, and awful suffering from those who are sick, living with an un-diagnosed and therefore untreated disease.

As recently as two years ago, I was told by not one, but two infectious disease specialists that my disease was not Lyme disease, because I tested negative with the Elisa test, that the Elisa test was the gold standard for Lyme disease diagnosis, that you could get any positive test you wanted from an ACCREDITED US lab (referring to a Western Blot from Igenex in California), and that clinical trials have proved that antibiotic therapy is ineffective against chronic Lyme disease.

None of these things are true.

The blacklegged tick (Ixodes scapularis), the ...

The blacklegged tick (Ixodes scapularis), the primary vector for Lyme disease in the central and eastern United States. (And elsewhere, too. Uploader) (Photo credit: Wikipedia)

These doctors refused to consider the very number of my symptoms.  That, alone, according to the Centre for Disease Control in my own jurisdiction, is enough for  a positive diagnosis of Lyme disease.  No other disease, except syphilis, which is very easy to test for, has such a high number of symptoms.

They could not or would not explain why my throat was sore for five years, and still had visible pustules.

They could not explain why I was getting sicker, and ignored that fact.

They could not explain why I continued to test positive for Bartonella, even after a short run of antibiotics, and when I tested negative for the third time for HIV, concluded that I had a natural genetic weakness in my immune system.  That declaration was completely in opposition to the fact that at 47 years of age, having worked since 17 years of age, I had rarely missed a day of work, and often worked for years in a row, never missing a day of work, in a very physically and mentally demanding field.

They could not explain why my health improved while on antibiotics and declined when I went off antibiotics, claiming it was a placebo effect.  (I am one of  the few that cannot be hypnotized.  I am NOT open to suggestion.)

They could not explain why my cortisol levels were elevated.  Cortisol is the “fight-or-flight” hormone that is produced at times of stress, either by the situation (fear, for example) or by other stressors on the body, such as alcohol (I do not drink) or illness.

They diagnosed me with CFS (Chronic Fatigue Syndrome), which in itself is a misnomer.  (See my article on ME –  Myalgic Encephalomyelitis ).  In fact, one of the recommendations of the massive study done on ME is that the patient be tested for previous exposure to Borrelia!  They simply do not understand the biology of Lyme disease.  Their own Colleges have told them that it is simple to treat and has no long lasting effects.

They denied that any clinical study has been done that supports long term antibiotic therapy for chronic Lyme disease, and even cite a study done a few years ago that was DESIGNED TO FAIL, yet I have on my desk a copy of a study done at Columbia University and reported in final form on June 26, 2007, more than six years ago!  (A randomized, placebo-controlled trial of repeated IV antibiotic therapy for Lyme encephalopathy, by B. A. Fallon, MD et al ).

This study concluded that “IV ceftriaxone therapy results in short-term cognitive improvement for patients with posttreatment Lyme encephalopathy, but relapse in cognition occures after the antibiotic is discontinued.  Treatment strategies that result in sustained cognitive improvement are needed.”  Neurology 2008;70:992-1003

To put this in its simplest terms, their study proved that patients who were proven to have had Lyme disease, who had already had the standard treatment, but who continued to exhibit the cognitive problems with Lyme disease (brain fog), improved with another short run of antibiotics, then relapsed again when the treatment was discontinued.

The bottom line is, every bit of real science that has been done related to Lyme disease for at least the last ten years shows that unless it is diagnosed and treated in the early, acute stages, Lyme disease is very hard to treat with the present available medical knowledge, and takes a long time to resolve, if it is ever resolved.  It is not known at this point in time if it is possible to cure everyone who truly has chronic Lyme disease.

One man who has studied Lyme disease (burreliosis) extensively is Dr. Alan MacDonald.  He is a pathologist and recognized expert in Lyme disease.  He studied Alzheimer’s for many years, and is one of several top research doctors who have made a positive connection between Alzheimer’s and Lyme disease.  For example, he successfully grew burrelia cultures from the tissue four out of four brains taken from patients who died of diagnosed Alzheimer’s.

Dr. MacDonald has very graciously produced a number of videos in which he describes in detail many of the problems with Lyme disease recognition, diagnosis, denial and treatment.  I am including part one, here.  These are very good videos.  Dr. MacDonald has done a remarkable job of explaining everything in a clear, concise, and very understandable way.

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Rashes in Lyme diagnosis

Friday, October 18th, 2013

Rashes in Lyme diagnosis – a “typical” bulls eye is not the only rash to look for

by Dave Cottrell

Rashes in Lyme diagnosis, we have long been told, are present most of the time, and are always the bulls eye rash. The evidence to the contrary has been steady and almost overwhelming, yet steadily and overwhelmingly ignored by the medical “powers that be,” the various Colleges of Physicians and Surgeons.

English: Borrelial lymphocytoma Polski: Naciek...

English: Borrelial lymphocytoma Polski: Naciek limfocytarny, Pseudochłoniak boreliozowy, limfocytoma Français : Lymphocytome borrélien, liée à la maladie de Lyme (Photo credit: Wikipedia)

As one who was continually “missed” diagnosed – in other words, they could not figure out what was wrong with me – these new facts just coming out new from good medical research prove what many, if not most of us who have suffered so long have been saying: While the “bulls eye” rash is considered absolute proof positive that the patient has Lyme disease, it is not the only rash that Lyme disease may present.

Many of us have strange lesions, rashes, even keritosis and “psoriasis” that may show up anywhere on our bodies and may last indefinitely. It is already well known that European burrelia may produce skin conditions that look nothing like a bulls eye, yet this has been denied in North America, especially, for years.

Now the latest research proves that there are many different so-called atypical rashes associated with Lyme burrelia that may or may not present during an active infection.

Far from being a symptom that makes Lyme disease even more confusing for medical practitioners, this will make diagnosis simpler for those who educate themselves about the various symptoms of Lyme disease.

Raised, red borders around indurated central p...

Raised, red borders around indurated central portion (Photo credit: Wikipedia)

This latest research, reported today by the Lyme Disease Research Database, is another much needed weapon in the battle for proper diagnosis and treatment of Lyme disease.

For further reading, go to http://www.lyme-disease-research-database.com/lyme_disease_blog_files/bulls-eye-not-the-only-skin-rash.html#unique-entry-id-313

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New Lyme bug and natural antibiotics

Saturday, April 6th, 2013

A new lyme bug and natural antibiotics

New Lyme bug and natural antibiotics

New Lyme Bug and Natural Antibiotics was originally published by the Lyme Disease Research Database on 01/19/13 10:12 – see link at end of snippet.
 

 

A friend and I had made a date to see a matinee. I was getting ready to leave when she called.

“I’m sick,” she managed hoarsely. “The flu….”

I decided that I needed an antidote to all the dire flu-bug warnings – and also to the unwelcome news story about the latest Lyme-like bug in the US, the Borrelia miyamotoi (more on that in a minute). So I picked up Herbal Antibiotics, 2nd Edition: Natural Alternatives for Treating Drug-resistant Bacteria. This is a good time to revisit the sound advice of master herbalist and author Stephen Buhner….

Read the article:
via New Lyme bug and natural antibiotics | Lyme Disease Research Database.

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